Orphanet 是一个提供孤儿药物及罕见疾病信息的欧洲网站。[1]该网站包含医生和病人等之信息。其行政办公室位于巴黎,其官方医学期刊(Medical journal)是由BioMed Central代理所出版的Orphanet罕见疾病期刊。
该网站是由Inserm所领导的35个国家的学术机构联盟进行管理的。[2]
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